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Eva Grace Kelly, 8, of West Haven, is on life support due to a degenerative muscle disorder, but her family works hard to give her as much of a normal life as possible. WEST HAVEN — Melissa Lombardo Kelly remembers only one time when she thought there was no hope for her baby daughter, born with spinal muscular atrophy , a rare, progressive, genetic disease that robs victims of their ability to move. Eva Grace Kelly was 8 months old and the doctors held a family meeting at the hospital, chaplain present, with Eva a glass window away in the intensive care unit on life support.

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